Inspiration

Check out how others in our community are using their BoosterJots! Use #BOOSTERJOTS on Instagram to share your creations and inspire others too!

Wonder-Pow! Does a body good. Today’s my first

Wonder-Pow!
Does a body good.

Today’s my first day back to full dose since being in he hospital.
Work your magic baby!
💪💜✨

Booster Jots to the rescue! Making every treatment

Booster Jots to the rescue!
Making every treatment count!

What do you want to receive today?
✨💪🌞❤️

Raising the vibration of my meds this morning. @

Raising the vibration of my meds this morning.

@trevorhallmusic at Red Rocks via Youtube! My little speaker is vibrating those vibes all the way up the pole through the bags! I LOVE this.
My heart and face smile and I remember some part of myself.

Today, it felt like time to bring the music back.
Hopefully I will be feeling better and graduate to dancing with my IV pole again soon.
Right now the meds mostly have my bod down for the count so it’s more just stretching and gentle movement to get through.

The stay has not been easy so far, but I am reminded of what a good hospital this is.

I have been blessed each day with something miraculous and beautiful. I’m so glad I know how to open my heart and being to these things.

It can be hard being so sensitive in this environment , but this sensitivity also means that I see and feel all the opportunity and magic subtleties too.

My lungs are improving, in a crazy wild awesome way. It will be so interesting to see what’s possible with both cleaning them up AND Trikafta on board.
The cocktail of medications they are needing to use for some resistant bugs are REALLY hard on the rest of me though.

So it’s a balance- how much can the body take and recover from for the sake of the lungs?
I’m currently being monitored very closely (blood draws start at 4am daily) as my body is telling us it’s meeting some of it’s limits.

Always always my respect is for the Whole, as much as I can. Listening in… opening up… with Love.

♥️

Yes please. #boosterjots

Yes please.
#boosterjots

Keep it comin big T. 💪✨

Keep it comin big T.
💪✨

Hello dear beautiful people! I was interviewed ea

Hello dear beautiful people!

I was interviewed earlier this year by Kate Pecora from Patients Rising for their podcast on Medical Tourism.
My interview is towards the end of the episode and about 15 minutes or so.
I share about what brought me to Denver, the process of getting here, and a little bit of life since the big move.

Moving for medical care was a huge decision. Maybe one of the most important in and for my life.
There is a lot to process and think about for those who find themselves in these situations.

Most have no idea about the layers and
all that this entails.

Patients Rising is an organization that can help people find resources and support.

Check out the interview.
I’d love to hear your thoughts and reflections.

#patientsrising #patient #perspective #healthcare #advocacy #advocate #findsolutions #medicaltourism #cysticfibrosis #cysticfibrosispatient #medicalcare #mycobacterium #nationaljewishhealth

🌈✨💫🌺🌻🍁🍂🐲🕊💗🙏🏼

Sending healing rainbow love out to you all today.

Sending healing rainbow love out to you all today.

I love a bandaids that make me smile and also remember magic!

🌈✨

Sometimes you just have to look under your nose to

Sometimes you just have to look under your nose to find imprints of love.
😉❤️

Here we go again... Eye on the prize. One more mo

Here we go again...
Eye on the prize.
One more month.

It’s time to make a change for me, but also to r

It’s time to make a change for me, but also to remind you all where the heart and power of the Booster Jots concept lies- within you!
💪✨🤸🏻‍♀️

We are strong and powerful. ✨

We are strong and powerful.
✨

Opening my airways to freedom today. Choose it.

Opening my airways to freedom today.

Choose it. Feel it. Receive it.
#boosterjots

When a person has Cystic Fibrosis, at least until

When a person has Cystic Fibrosis, at least until this point, treatments are forever ♾.
It’s important to find a healthy way to welcome these things into our lives, know them as life giving, and spend some time receiving them as such.

An important part of caring for yourself and loved

An important part of caring for yourself and loved ones who are in need of medical treatment is doing research.

Learning all you can about what’s happening in your body and what your options are will help you to be in partnership with your care team.

If you are understandably not up to researching then enlist the help of someone you trust. This could be a close friend, family member, or paid health advocate (worth their weight in gold). Make sure those who are helping you navigate your options understand your values and goals.

It’s not always easy, but your best outcome could depend on it.

💪✨

Sometimes we just need to try on a new perspective

Sometimes we just need to try on a new perspective.
😉

Receive it. Be it. Sometimes it helps to have a r

Receive it.
Be it.
Sometimes it helps to have a reminder- anything is possible.
•
#light #✨

Do you know what day it is?! • Last day for a mo

Do you know what day it is?!
•
Last day for a month- Wooooo!
#cayston

The only thing that means for those who actually l

The only thing that means for those who actually live with CF is that May is a designated time where multiple people at once dedicate time to educate and intentionally share and talk about it.
•
I’m grateful for this.
I am grateful that there is a designated month where this is acknowledged and happens.
I’m grateful that so many take the time to share and fundraise.
I’m grateful that because of this that there might be someone else that I encounter in the world who might actually know a little something about what the heck Cystic Fibrosis is.
•
Because of May’s dedication, someone who hadn’t before, might have even the smallest glimpse of understanding about CF.
It means that there might be less chance of encountering someone who says, “Oh yeah, I know what that is, my sister caught that when she was in California”. (Yes, someone actually said that to me.)
•
CF is what is called an “orphan disease”. This means that not enough people have it for the pharmaceutical industry to deem it as profitable, so they have little incentive to market medications. Cystic Fibrosis research also gets no government funding for the same reason.
This is why fundraising is especially important and matters so much for those 30,000 plus who are living with CF. We are all we have AND we are doing a great job.
•
Two organizations that have done so much for families and individuals who are living with CF are the @cf_foundation and @cfri.cure.cf .
If you are looking for a place to learn more, or see how you might be able to make someone with CF’s life a little easier, please check these organizations out.
(Continued in comments)

May is Cystic Fibrosis Awareness Month. Some year

May is Cystic Fibrosis Awareness Month.
Some years I do a lot of educating about CF during May. Well, all year, but particularly May.
This year I am letting myself take a little time instead, to be with what’s here.
That said, I wanted to share at least one post to say, there’s a genetic disease called Cystic Fibrosis.
It’s layered and challenging and does all sorts of different things to a body.
@lovetobreathe does a great job of sharing some of those things so if you want to know more, check out this post and her page.
There’s still way too many loosing their lives and quality of life to CF.
That said, there are some great organizations that are helping those of us who live with it.
@cf_foundation and @cfri.cure.cf are two important ones.
Please consider learning something you didn’t know about CF this month.
Love and gratitude.
💜

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